National Leiomyosarcoma Foundation
Providing education, support, research funding and advocacy for the
Global LMS Community as we move forward in the quest for the cure.
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A guiding light for patients and caregivers facing a LeioMyoSarcoma diagnosis.
Joseph Jang
Boulder 70.3 & Ironman California
Training for two IRONMAN races to raise funds for NLMSF-supported LMS research. Every swim, bike, and run represents a step forward in the fight against leiomyosarcoma.
What Our Experts Say
Brian Van Tine, MD
Sarcoma Program Director, Alvin J. Siteman Cancer Center
"I love this group, it makes a difference."
Seth Pollack, MD
Professor, Northwestern University Feinberg School of Medicine
"I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers..."
Arun Singh, MD
Director of UCLA Sarcoma Medical Oncology
"The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians..."
Voices from the LMS Community
Hear from patients, caregivers, and clinicians who support the NLMSF mission
“"You are doing so much for so many" You should be proud of all you have accomplished within the Foundation.”
“You and Mitch are heroes to our family.”
“"NLMSF is recommended for patients and care givers looking for information on Leiomyosarcoma."”
“"Thank you, you both are a light where there is fog."”
“The NLMSF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease, with the direct intent to provide sorely needed new therapeutic approaches.”
“I was diagnosed with LMS just one week ago. Annie Achee and her husband called me and spent about 45 minutes telling me what to expect, what questions to ask and the kind of specialists I would need. It was the most valuable 45 minutes of my life so far.”
“The LMS Roundtable offers the possibility to work with all researchers in the world dedicated to a rare tumor such as LMS - gathering the community of experts dedicated to LMS and hearing the patients' perspectives as well. It is an honor to lead the gynecological working group within the NLMSF-SPAEN International Research Roundtable.”
“Thank you 100x's over, thank you. I have been praying and asking God to send me someone good and kind to help me. Thank you both for all your doing. Only wish you could be with me and hold my hand. You're wonderful! Thank you. Sincerely, Mary & Steve Lloyd”
“"You and Mitch are doing great things in the Foundation, and the Research Roundtable approach to taking things to the next level - this is a good thing!"”
“Annie and Mitch are both so special, and make me want to live in this world. I love you guys and NLMSF.”
“"I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such great patient advocates which I admire."”
“NLMSF: Thank you so much for your kind words and your recommendations regarding speakers and your great passion and commitment got us to the finish line in pulling this Rare Cancer / Sarcoma Webinar program together. All is possible with our team work.”
“No better way to advance LMS research - the Roundtable is an achievement to focus on LMS-specific study, and harness scrambled data with different histology's of various sarcomas - a clear signal for this disease type.”
“We are all interconnected through one big LIFE, Annie, so it is each of our duty to be mutually supportive. Looking forward to your new and useful insights.”
“I strongly support the NLMSF in their efforts to fight LMS by bringing together world-wide experts - this is a major achievement. Together we are stronger and smarter to fight this disease.”
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers. It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
“This is exciting - and the way the Research Roundtable has unfolded is the right approach.”
“Thank you so much with all of your help, if my situation is getting worst, I will contact you to ask for help again. Here is Canada, it is so different to US, and in Vancouver, we dont have many options. In my heart, I am always thinking of you and all of your help to me.”
“Thank you so much for all you have done for us and for LMS research community! We really appreciate!”
“Annie thanks for your warm words for me and for my country. Yaacov is getting all the best treatment that our country can offer, but now its only a miracle or a new medicine that can help. I feel lucky to have you in my life.”
“The essential benefit arising from Foundation's LMS Roundtable working groups is the opportunity to bring an assembly of researchers and clinicians into a conversation that spans basic research to clinical application. By working together we learn from each other's expertise and build future innovations in LMS patient care.”
“Dear Annie and Mitch, thank you so very much for your Godly service, direction, precious time, and great knowledge. You have given me a new perspective. You are an awesome duo and I am grateful for your wonderful work.”
“I love the NLMSF - I love the patient programs held - your signature support advocacy to collaborate with sarcoma centers. LMS is common enough to have had a specific focus initiative - and the NLMSF was many steps ahead of the curve, to launch the LMS International Research Roundtable.”
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You're not alone. Annie Achee has been my life coach through this.”
“Dear Annie and Mitch - Thank YOU for supporting the cause You could have just done other stuff. But you choose to fight for this disease. It makes and will further make a difference!!”
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers.”
“You have made a huge difference in the infrastructure of the NLMSF. You should be proud of what you have done. Beverly and I congratulate you both! It is a great Foundation.”
“From the bottom of our hearts, thanks for all the great work that you do for LMS. It is clear that your organization goes above and beyond the call of duty. I admire the work and the diligent efforts to research and aid in moving forward in the quest for a cure.”
“I think that the LMS Research Roundtable is a valuable model of bringing clinicians and scientists together to discuss the state of LMS and to develop ideas for pushing the field forward.”
“I found NLMSF 3 years after my diagnosis of LMS; wish I'd found them sooner. The resources and information they provide is so helpful and the foundation's commitment to furthering research on this disease is vital.”
“Annie and Mitch! Thanks for all you for our patients.”
“Thank you NLMSF and Annie for your support and giving me information to get under the best hospital and doctor care.”
“Thank you so much for your note. You two make our whole family feel enfolded in your care and love. We are so grateful for you.”
“"You are doing so much for so many" You should be proud of all you have accomplished within the Foundation.”
“You and Mitch are heroes to our family.”
“"NLMSF is recommended for patients and care givers looking for information on Leiomyosarcoma."”
“"Thank you, you both are a light where there is fog."”
“The NLMSF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease, with the direct intent to provide sorely needed new therapeutic approaches.”
“I was diagnosed with LMS just one week ago. Annie Achee and her husband called me and spent about 45 minutes telling me what to expect, what questions to ask and the kind of specialists I would need. It was the most valuable 45 minutes of my life so far.”
“The LMS Roundtable offers the possibility to work with all researchers in the world dedicated to a rare tumor such as LMS - gathering the community of experts dedicated to LMS and hearing the patients' perspectives as well. It is an honor to lead the gynecological working group within the NLMSF-SPAEN International Research Roundtable.”
“Thank you 100x's over, thank you. I have been praying and asking God to send me someone good and kind to help me. Thank you both for all your doing. Only wish you could be with me and hold my hand. You're wonderful! Thank you. Sincerely, Mary & Steve Lloyd”
“"You and Mitch are doing great things in the Foundation, and the Research Roundtable approach to taking things to the next level - this is a good thing!"”
“Annie and Mitch are both so special, and make me want to live in this world. I love you guys and NLMSF.”
“"I am very much engaged in understanding LMS and hoping to improve care. Annie and Mitch are such great patient advocates which I admire."”
“NLMSF: Thank you so much for your kind words and your recommendations regarding speakers and your great passion and commitment got us to the finish line in pulling this Rare Cancer / Sarcoma Webinar program together. All is possible with our team work.”
“No better way to advance LMS research - the Roundtable is an achievement to focus on LMS-specific study, and harness scrambled data with different histology's of various sarcomas - a clear signal for this disease type.”
“We are all interconnected through one big LIFE, Annie, so it is each of our duty to be mutually supportive. Looking forward to your new and useful insights.”
“I strongly support the NLMSF in their efforts to fight LMS by bringing together world-wide experts - this is a major achievement. Together we are stronger and smarter to fight this disease.”
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers. It is very powerful to know there are others who are many years into their LMS journey, and are leading happy, productive lives.”
“This is exciting - and the way the Research Roundtable has unfolded is the right approach.”
“Thank you so much with all of your help, if my situation is getting worst, I will contact you to ask for help again. Here is Canada, it is so different to US, and in Vancouver, we dont have many options. In my heart, I am always thinking of you and all of your help to me.”
“Thank you so much for all you have done for us and for LMS research community! We really appreciate!”
“Annie thanks for your warm words for me and for my country. Yaacov is getting all the best treatment that our country can offer, but now its only a miracle or a new medicine that can help. I feel lucky to have you in my life.”
“The essential benefit arising from Foundation's LMS Roundtable working groups is the opportunity to bring an assembly of researchers and clinicians into a conversation that spans basic research to clinical application. By working together we learn from each other's expertise and build future innovations in LMS patient care.”
“Dear Annie and Mitch, thank you so very much for your Godly service, direction, precious time, and great knowledge. You have given me a new perspective. You are an awesome duo and I am grateful for your wonderful work.”
“I love the NLMSF - I love the patient programs held - your signature support advocacy to collaborate with sarcoma centers. LMS is common enough to have had a specific focus initiative - and the NLMSF was many steps ahead of the curve, to launch the LMS International Research Roundtable.”
“In 2012, I was diagnosed with leiomyosarcoma, but had never heard of it. God allowed me to be part of something that changed how I wanted to fight this. I learned that I must fight and teach as many people as I can that are fighting cancer. You're not alone. Annie Achee has been my life coach through this.”
“Dear Annie and Mitch - Thank YOU for supporting the cause You could have just done other stuff. But you choose to fight for this disease. It makes and will further make a difference!!”
“NLMSF is a wonderful place to help you feel that you are not alone in your LMS journey. You will have access to knowledge, practical tips, resources, and, best of all, contact with others who may be newly diagnosed or long term thrivers.”
“You have made a huge difference in the infrastructure of the NLMSF. You should be proud of what you have done. Beverly and I congratulate you both! It is a great Foundation.”
“From the bottom of our hearts, thanks for all the great work that you do for LMS. It is clear that your organization goes above and beyond the call of duty. I admire the work and the diligent efforts to research and aid in moving forward in the quest for a cure.”
“I think that the LMS Research Roundtable is a valuable model of bringing clinicians and scientists together to discuss the state of LMS and to develop ideas for pushing the field forward.”
“I found NLMSF 3 years after my diagnosis of LMS; wish I'd found them sooner. The resources and information they provide is so helpful and the foundation's commitment to furthering research on this disease is vital.”
“Annie and Mitch! Thanks for all you for our patients.”
“Thank you NLMSF and Annie for your support and giving me information to get under the best hospital and doctor care.”
“Thank you so much for your note. You two make our whole family feel enfolded in your care and love. We are so grateful for you.”
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Our Mission
To support the LMS patient, family, and caregiver community through education, information sharing, resource assistance, and 24/7 direct phone support.
To address unmet needs in treatment, research, clinical trials, and care through the Foundation's International LMS Research Roundtable—collaborating with researchers, clinicians, partner organizations, and especially the LMS community—to achieve meaningful progress.
To fund LMS-specific research that advances the field of study and accelerates development of clinical trials and treatments.
To raise global, national, and community awareness of this disease, prioritizing actionable goals and delivering measurable progress.
Learn More About Us
Annual Accountability Reports
Access our comprehensive annual reports documenting our progress, achievements, and financial stewardship
2024
Latest Report2024 Accountability Report
Our comprehensive 25th anniversary report detailing research funding, grant awards, repurposed drug initiatives, and expanded international collaborations.
- ✔ Research Awardees
- ✔ 60+ Roundtable Researchers
- ✔ Repurposed Drug Initiative
- ✔ International Collaborations
2023
Previous Report2023 Accountability Report
Our annual report highlighting achievements in leiomyosarcoma research, patient support programs, and community advocacy initiatives.
- ✔ Research Awardees
- ✔ SPORE LMS Project
- ✔ MD Anderson Collaboration
- ✔ 24 Years of Service
Our Partners
Working together with leading organizations to advance LMS research and patient care
Dr. Raphael Pollock, M.D., Ph.D
James Cancer Center, Ohio State Univ
The NLSMF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease...
Arun Singh, M.D.
Associate Professor, Sarcoma Service
The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians to learn more about this rare disease...
From Patients and Caregivers to You
Hear directly from LMS survivors and specialists who have been where you are. Their stories provide insight, guidance, and hope for your journey.
Dr. Mitch Achee
Diagnostic RadiologistLMS SurvivorChairman, NLMSF Medical Advisory Board
“As both a medical professional and an LMS survivor, I understand the importance of accurate information and community support in navigating this complex journey.”
Watch Full VideoTembi Locke
Actress & AuthorNLMSF Technical Advisor
“From Scratch chronicles my personal LMS journey with my husband. The NLMSF provided invaluable guidance, which is why I selected them as the technical advisor for the Netflix adaptation of my memoir.”
Watch Full VideoChandalyn Williams, Ph.D
NLMSF Board Member
“The NLMSF serves as a guiding light to face the LMS journey. Their resources and community support make a significant difference in the lives of patients and caregivers.”
Watch Full VideoThese personal stories offer unique insights from those who understand what you're going through. Remember, you're not alone on this journey.
Join Our Mission To Support The LMS Community
Your support makes a real difference in the lives of patients and families affected by LMS.