Welcome to the NLMSF.org
Our mission is to provide leadership in: supporting research of LeioMyoSarcoma, improving treatment outcomes of those affected by this disease as well as fostering awareness in the medical community and the general public.
Leiomyosarcoma is a rare form of cancer, which affects about four people in every million. It spreads through the blood stream and can affect the lungs, liver, blood vessels or any other soft tissue in the body. Presently there is no cure, only remission if it can be attained, and this rare cancer can reappear anywhere and at any time. Because of its rarity, few doctors know how to treat it and it attracts little research.
Leiomyosarcoma is a rare form of cancer, which affects about four people in every million. It spreads through the blood stream and can affect the lungs, liver, blood vessels or any other soft tissue in the body. Presently there is no cure, only remission if it can be attained, and this rare cancer can reappear anywhere and at any time. Because of its rarity, few doctors know how to treat it and it attracts little research.
Dec. 6, 2012: LeioMyoSarcoma is added to Social Security Compassionate Allowances
Please view the new list of Social Security Compassionate Allowances and requirements can be found here.
Please view the new list of Social Security Compassionate Allowances and requirements can be found here.
Survivor Story - Peter Reganato has beat LMS for 32 years! A must read! Read this story now...
The National LMS Foundation Inc. was formed on July 14, 2001. We were granted 501 c(3) status from the IRS as a non profit organization
Board Structure
Interested in Board Affairs and the structure of our organization? Check out our Corporate Page with all the information you need to know! Hear it directly from the board and read the by-laws and see the board in action.
Interested in Board Affairs and the structure of our organization? Check out our Corporate Page with all the information you need to know! Hear it directly from the board and read the by-laws and see the board in action.
Our Founders
- Ed Hoag (The Late Nancy Hoag)
- Harry Froling
- Diana Froling
- Kenneth Gibson
- Karen Gibson
- Joe Fischer (The Late Donna Fischer)
You can contact us at:
National LeioMyoSarcoma Foundation
2843 E. Grand River #230
East Lansing, MI 48823
Phone: (888) 449-6805
Fax: (517) 853-0434
National LeioMyoSarcoma Foundation
2843 E. Grand River #230
East Lansing, MI 48823
Phone: (888) 449-6805
Fax: (517) 853-0434

