Past Posts
Previous Posts from the former guest book.
submitted on October 26, 2009 10:52 PM EDT
Name: Renee Feitelberg
Email Address: abbe13@aol.com
Web site URL:
Comments: I have a sarcoma in my right calf. it goes from my ankle to my knee. I have had 5 weeks of radiation and the latest MRI shows necrosis thought the tumor. I am having surgery Nov.11th in Charlotte, NC. I am looking for someone to converse with as I know no one at this point. we talk about amputation and spreading of the cancer but I don't know what the chances are for me. It is very scary. I am 63 year old female. thanks for any help you can give me. Renee
How did you hear about this site? Northwest Sarcoma society website.
Name: Renee Feitelberg
Email Address: abbe13@aol.com
Web site URL:
Comments: I have a sarcoma in my right calf. it goes from my ankle to my knee. I have had 5 weeks of radiation and the latest MRI shows necrosis thought the tumor. I am having surgery Nov.11th in Charlotte, NC. I am looking for someone to converse with as I know no one at this point. we talk about amputation and spreading of the cancer but I don't know what the chances are for me. It is very scary. I am 63 year old female. thanks for any help you can give me. Renee
How did you hear about this site? Northwest Sarcoma society website.
submitted on October 9, 2009 11:00 PM EDT
Name: Karin Holme
Email Address: holmes_scott@comcast.net
Web site URL:
Comments: Thank you for this Page My frind has this cancer on her liver 3 time of having it frist 2 times was on her eye We have ben frinds sence we where 5 now 37 now we have 5 year old Grils We are all fighting with her
How did you hear about this site? just found
Name: Karin Holme
Email Address: holmes_scott@comcast.net
Web site URL:
Comments: Thank you for this Page My frind has this cancer on her liver 3 time of having it frist 2 times was on her eye We have ben frinds sence we where 5 now 37 now we have 5 year old Grils We are all fighting with her
How did you hear about this site? just found
submitted on October 4, 2009 8:17 PM EDT
Name: Karen Jeffress
Email Address: karenjeffress@hotmail.com
Web site URL:
Comments: Diagnosed last week with LMS after routine hysterectomy for fibroids. PET scans this week. Fingers crossed. Commencing radiation in two weeks. Life has changed forever. Being a rare cancer, I hope the treatments will be the correct ones. Eltham Victoria Australia.
How did you hear about this site?
Name: Karen Jeffress
Email Address: karenjeffress@hotmail.com
Web site URL:
Comments: Diagnosed last week with LMS after routine hysterectomy for fibroids. PET scans this week. Fingers crossed. Commencing radiation in two weeks. Life has changed forever. Being a rare cancer, I hope the treatments will be the correct ones. Eltham Victoria Australia.
How did you hear about this site?
submitted on August 20, 2009 2:26 PM EDT
Name: Meghan Clark
Email Address:
Web site URL:
Comments:
How did you hear about this site?
Name: Meghan Clark
Email Address:
Web site URL:
Comments:
How did you hear about this site?
submitted on August 12, 2009 12:13 PM EDT
Name: Cathy Hodgkins
Email Address: Cathyhodgkins@verizon.net
Web site URL:
Comments: I have a friend with LMS. She just finished chemi and radiation. We live in northern va/Washington dc area, and I wondered if there are any events to raise funds in this area
How did you hear about this site?
Name: Cathy Hodgkins
Email Address: Cathyhodgkins@verizon.net
Web site URL:
Comments: I have a friend with LMS. She just finished chemi and radiation. We live in northern va/Washington dc area, and I wondered if there are any events to raise funds in this area
How did you hear about this site?
submitted on July 6, 2009 10:30 AM EDT
Name: Todd Street
Email Address: kcchiefstds@yahoo.com
Web site URL:
Comments: Just want to make sure whatever contributions I make are specifically for this type of cancer. My wife was diagnosed with this type of cancer, Stage III. She is in remission for it after a year of chemo (unsuccessful) a high risk operation @ MD Anderson in Dec where they had removed a tennis ball sized tumor. The operation was considered a big success. She had 2 mo. of radiation earlier this year @ MD Anderson as well and her cat-scan last month was still "clear." But things will never be the same! It's still like a cloud chasing us. It really really really, sucks. People even family and close friendss don't understand why me and my wife are still so depressed, but enough of that.
How did you hear about this site? An e-mail stating that this would be the best organization to donate $$ (what little we have after this ordeal) just want to make sure it's spec for this type cancer, although all cancer sucks and I still make smaller donations to other cancer organizations....
Name: Todd Street
Email Address: kcchiefstds@yahoo.com
Web site URL:
Comments: Just want to make sure whatever contributions I make are specifically for this type of cancer. My wife was diagnosed with this type of cancer, Stage III. She is in remission for it after a year of chemo (unsuccessful) a high risk operation @ MD Anderson in Dec where they had removed a tennis ball sized tumor. The operation was considered a big success. She had 2 mo. of radiation earlier this year @ MD Anderson as well and her cat-scan last month was still "clear." But things will never be the same! It's still like a cloud chasing us. It really really really, sucks. People even family and close friendss don't understand why me and my wife are still so depressed, but enough of that.
How did you hear about this site? An e-mail stating that this would be the best organization to donate $$ (what little we have after this ordeal) just want to make sure it's spec for this type cancer, although all cancer sucks and I still make smaller donations to other cancer organizations....
submitted on June 18, 2009 6:25 PM EDT
Name: Nicole Bachtell
Email Address: nbachtell@gmail.com
Web site URL:
Comments: I was diagnosed April 2009, had radical hysterectomy and praying for the best.
How did you hear about this site? facebook
Name: Nicole Bachtell
Email Address: nbachtell@gmail.com
Web site URL:
Comments: I was diagnosed April 2009, had radical hysterectomy and praying for the best.
How did you hear about this site? facebook
submitted on May 18, 2009 4:52 PM EDT
Name: Richard Hill
Email Address: johnnylimbo98@yahoo.com
Web site URL:
Comments: a friend recently passed away due to this disease and I wanted to learn more or what I could about this disease.
How did you hear about this site? searching internet
Name: Richard Hill
Email Address: johnnylimbo98@yahoo.com
Web site URL:
Comments: a friend recently passed away due to this disease and I wanted to learn more or what I could about this disease.
How did you hear about this site? searching internet
submitted on May 17, 2009 10:00 PM EDT
Name: Gail Renaud
Email Address: sgrenaud@telus.net
Web site URL:
Comments: Thanks to foundations such as this, in time we may be able to "slay the dragon". In Canada there is no way to direct funds to LMS research. Thank God for you.
How did you hear about this site? web search
Name: Gail Renaud
Email Address: sgrenaud@telus.net
Web site URL:
Comments: Thanks to foundations such as this, in time we may be able to "slay the dragon". In Canada there is no way to direct funds to LMS research. Thank God for you.
How did you hear about this site? web search
submitted on April 25, 2009 1:58 AM EDT
Name: Edonila Inez Anaya
Email Address: anayanila2@hotmail.com
Web site URL:
Comments: Hi, I just wanted to say that i found your site very well put together and lot of info. Thank you so much for having it. As for me I started feeling sick last summer. My Red week slowly became longer which for me it went from 3 to 5 then to 7 and then from oct. on it just was almost all mo.. long story short i ended up in the ER Feb.09 by time i got to see a dr it was the 10th.AM and they told me i need surgery ASAP! so latter that am i was having a Hystoretomy they took even my ceric but left my olverys and tubs. then omg the new came 8weeks latter after many reviews that i had leiomyosarcoma... Ok so what was that.. well they told me i was in shock i am only 37 how could this happen.. so two weeks latter i had surgery again to take what they left out. wow ok now recovering cause it was just last week april 14th. Now just waiting for the news is anything funny was found with that stuf. So looking around i found your site got tons of info of what was going on or what it was. LMS is so much easyer to say lol ... my dr says he took an extra look around and made sure no signs of anything left. so i have high hopes that this is it for me.. although i do know it is posable it is not. ...ok so saying more than short story..lol well thanks any how.. always looking forward to what life is.. and what i will do no matter what it has in store for me. lol ps sorry really bad speller.. lol
How did you hear about this site? found on internet
Name: Edonila Inez Anaya
Email Address: anayanila2@hotmail.com
Web site URL:
Comments: Hi, I just wanted to say that i found your site very well put together and lot of info. Thank you so much for having it. As for me I started feeling sick last summer. My Red week slowly became longer which for me it went from 3 to 5 then to 7 and then from oct. on it just was almost all mo.. long story short i ended up in the ER Feb.09 by time i got to see a dr it was the 10th.AM and they told me i need surgery ASAP! so latter that am i was having a Hystoretomy they took even my ceric but left my olverys and tubs. then omg the new came 8weeks latter after many reviews that i had leiomyosarcoma... Ok so what was that.. well they told me i was in shock i am only 37 how could this happen.. so two weeks latter i had surgery again to take what they left out. wow ok now recovering cause it was just last week april 14th. Now just waiting for the news is anything funny was found with that stuf. So looking around i found your site got tons of info of what was going on or what it was. LMS is so much easyer to say lol ... my dr says he took an extra look around and made sure no signs of anything left. so i have high hopes that this is it for me.. although i do know it is posable it is not. ...ok so saying more than short story..lol well thanks any how.. always looking forward to what life is.. and what i will do no matter what it has in store for me. lol ps sorry really bad speller.. lol
How did you hear about this site? found on internet
submitted on April 21, 2009 11:18 AM EDT
Name: Ted Eiferman
Email Address: teiferma@paulsboro.k12.nj.us
Web site URL:
Comments: My wife Carol has it.
How did you hear about this site? From a friend
Name: Ted Eiferman
Email Address: teiferma@paulsboro.k12.nj.us
Web site URL:
Comments: My wife Carol has it.
How did you hear about this site? From a friend
submitted on April 19, 2009 10:48 PM EDT
Name: DonnaLyn Giegerich aka Mrs Red Bank US 2009
Email Address: dgiegerich@aol.com
Web site URL: www.donnalynspeaks.com/www.donnalyn.org
Comments: MaryAnn and Patti- Thank you for the opportunity to contribute to your well run Hugfest 09 program. I look forward to continuing to raise awareness for LMS in athletic and creative ways! Keep rockin,DL:)
How did you hear about this site? saw the page on another LMS supporters FB
Name: DonnaLyn Giegerich aka Mrs Red Bank US 2009
Email Address: dgiegerich@aol.com
Web site URL: www.donnalynspeaks.com/www.donnalyn.org
Comments: MaryAnn and Patti- Thank you for the opportunity to contribute to your well run Hugfest 09 program. I look forward to continuing to raise awareness for LMS in athletic and creative ways! Keep rockin,DL:)
How did you hear about this site? saw the page on another LMS supporters FB
submitted on April 18, 2009 5:10 PM EDT
Name: Pamela Moore
Email Address: PamelaDMoore@gmail.com
Web site URL:
Comments: another great Hugfest! Love you all! Keep on the good fight!
How did you hear about this site?
Name: Pamela Moore
Email Address: PamelaDMoore@gmail.com
Web site URL:
Comments: another great Hugfest! Love you all! Keep on the good fight!
How did you hear about this site?
submitted on April 8, 2009 12:54 PM EDT
Name: Jessica Haefner
Email Address: teadylove@gmail.com
Web site URL: http://www.magfundraising.com/jhlms
Comments: you can buy magazines and the proceeds will go to LMS Cancer research. the name stands for Jessica Haefner's LeioMyoSarcoma foundation
How did you hear about this site? research for my uncle who has LMS
Name: Jessica Haefner
Email Address: teadylove@gmail.com
Web site URL: http://www.magfundraising.com/jhlms
Comments: you can buy magazines and the proceeds will go to LMS Cancer research. the name stands for Jessica Haefner's LeioMyoSarcoma foundation
How did you hear about this site? research for my uncle who has LMS
submitted on April 5, 2009 12:38 PM EDT
Name: wendy velazquez
Email Address: jwv165@msn.com
Web site URL:
Comments: I'm so glad there is something like this.
How did you hear about this site? My cousin sent me this link,My goddaughter has this horrible cancer.
Name: wendy velazquez
Email Address: jwv165@msn.com
Web site URL:
Comments: I'm so glad there is something like this.
How did you hear about this site? My cousin sent me this link,My goddaughter has this horrible cancer.
submitted on April 4, 2009 2:57 PM EDT
Name: JL Bradley
Email Address: jcjbandthedog@yahoo.com
Web site URL:
Comments: Just had a uterine fibroid removed in many pieces laparoscopically since they thought it was benign. Found out two weeks later that it was a leiomyosarcoma. What an interesting journey I have now begun. Just two years post bone marrow transplant for CMML (still having Graft versus Host Disease) have to admit I was a bit surprised by this one. Thank goodness the research and interest continue despite the rarity of leiomyosarcomas.
How did you hear about this site? google search
Name: JL Bradley
Email Address: jcjbandthedog@yahoo.com
Web site URL:
Comments: Just had a uterine fibroid removed in many pieces laparoscopically since they thought it was benign. Found out two weeks later that it was a leiomyosarcoma. What an interesting journey I have now begun. Just two years post bone marrow transplant for CMML (still having Graft versus Host Disease) have to admit I was a bit surprised by this one. Thank goodness the research and interest continue despite the rarity of leiomyosarcomas.
How did you hear about this site? google search
submitted on March 30, 2009 2:43 AM EDT
Name: Holly Starks
Email Address: starks.holly@yahoo.com
Web site URL:
Comments: I have been operated on this past June 2008 I am a vietnam women veteran and have been treated with no care or tender loving concern about what i have no one knows nothing
How did you hear about this site? surfing the web
Name: Holly Starks
Email Address: starks.holly@yahoo.com
Web site URL:
Comments: I have been operated on this past June 2008 I am a vietnam women veteran and have been treated with no care or tender loving concern about what i have no one knows nothing
How did you hear about this site? surfing the web
submitted on March 30, 2009 12:23 AM EDT Name: Mike Langford
Email Address: mlangford277@gmail.com
Web site URL:
Comments: I was diagnosed with Leiomyosarcoma on February 13th, 2006. I had Surgery at the University of Minnesota Fairview Hospital in May of 2006. The tumor and my right kidney were removed. I currently have CT scans and see my oncologist at the Minneapolis VA Hospital every 4 months. I am thankful to be alive in that I was initially only given a couple of months to live.
How did you hear about this site? I found this site on the internet by doing my own research on this disease.
Email Address: mlangford277@gmail.com
Web site URL:
Comments: I was diagnosed with Leiomyosarcoma on February 13th, 2006. I had Surgery at the University of Minnesota Fairview Hospital in May of 2006. The tumor and my right kidney were removed. I currently have CT scans and see my oncologist at the Minneapolis VA Hospital every 4 months. I am thankful to be alive in that I was initially only given a couple of months to live.
How did you hear about this site? I found this site on the internet by doing my own research on this disease.
submitted on March 26, 2009 12:29 PM EDT
Name: derek wilson
Email Address: madhat27@googlemail.com
Web site URL:
Comments: i didn't realise how rare my condition is even though my doctor said that it was an unusual one and even more unusual to have it in my foot so thank you for your information and website
How did you hear about this site? facebook
Name: derek wilson
Email Address: madhat27@googlemail.com
Web site URL:
Comments: i didn't realise how rare my condition is even though my doctor said that it was an unusual one and even more unusual to have it in my foot so thank you for your information and website
How did you hear about this site? facebook
submitted on March 24, 2009 6:08 PM EDT
Name: Kayla Douglas
Email Address: kayladouglas2@yahoo.com
Web site URL:
Comments: ULMS survivor
How did you hear about this site?
Name: Kayla Douglas
Email Address: kayladouglas2@yahoo.com
Web site URL:
Comments: ULMS survivor
How did you hear about this site?
submitted on March 21, 2009 2:36 PM EDT
Name: Betty Principe
Email Address: bettyprincipe@comcast.net
Web site URL:
Comments: Just recently Diagnosed
How did you hear about this site? searching the web
Name: Betty Principe
Email Address: bettyprincipe@comcast.net
Web site URL:
Comments: Just recently Diagnosed
How did you hear about this site? searching the web
submitted on March 8, 2009 2:51 PM EDT
Name: Larry & Maxine Johnson
Email Address: MaxieJ1@aol.com
Web site URL:
Comments: Carol: We will have you in our prayers. Good luck on the work at Fred Hutch. We are certainly big fans of theirs and have great confidence in our experiences there and what they can do!
How did you hear about this site?
Name: Larry & Maxine Johnson
Email Address: MaxieJ1@aol.com
Web site URL:
Comments: Carol: We will have you in our prayers. Good luck on the work at Fred Hutch. We are certainly big fans of theirs and have great confidence in our experiences there and what they can do!
How did you hear about this site?
submitted on March 2, 2009 8:43 PM EST
Name: M Walls
Email Address: mgwalls@bluemarble.net
Web site URL:
Comments: I was diagnosed with LeioMyo Sarcoma on April 24, 2000; it was in my inferior vena cava; I had surgery and had a 3 inch area cut out and a new graft put in. I have been healthy almost 9 yrs now. I lost my dog to this same cancer 3 yrs ago.You have to keep positive that you can beat this thing. I was a patient at Methodist Hospital in Indianapolis, IN. I pray for anyone that goes through this. I suffered with pain in my abdomen for over 2 years before they found what was causing my pain. 9 yrs ago I couldn't find any info on this I'm so glad to see that I'm not alone. Keep the faith!
How did you hear about this site? I just happened upon this site.
Name: M Walls
Email Address: mgwalls@bluemarble.net
Web site URL:
Comments: I was diagnosed with LeioMyo Sarcoma on April 24, 2000; it was in my inferior vena cava; I had surgery and had a 3 inch area cut out and a new graft put in. I have been healthy almost 9 yrs now. I lost my dog to this same cancer 3 yrs ago.You have to keep positive that you can beat this thing. I was a patient at Methodist Hospital in Indianapolis, IN. I pray for anyone that goes through this. I suffered with pain in my abdomen for over 2 years before they found what was causing my pain. 9 yrs ago I couldn't find any info on this I'm so glad to see that I'm not alone. Keep the faith!
How did you hear about this site? I just happened upon this site.
submitted on February 26, 2009 8:42 AM EST
Name: Lisa Haskins
Email Address: punauni@comcast.net
Web site URL:
Comments: My Mom has LMS and I have decided to get a tattoo of the LMS ribbon in her honor.
How did you hear about this site? Looking for LMS Ribbons
Name: Lisa Haskins
Email Address: punauni@comcast.net
Web site URL:
Comments: My Mom has LMS and I have decided to get a tattoo of the LMS ribbon in her honor.
How did you hear about this site? Looking for LMS Ribbons
submitted on February 25, 2009 11:25 PM EST
Name: Janis Linnehan
Email Address: KLinnehan@aol.com
Web site URL:
Comments:
How did you hear about this site?
Name: Janis Linnehan
Email Address: KLinnehan@aol.com
Web site URL:
Comments:
How did you hear about this site?
submitted on February 24, 2009 8:44 PM EST
Name: Sharon Gavin
Email Address: SVGINCHRIST@aol.com
Web site URL:
Comments: I was diagnosed with LMS in November 2007 and underwent a total abdominal hysterectomy at Rush University/Medical Center. I had pelvic radiation(28)treatments for the cancer that returned in the vagina along with a combination of Chemo- Carbo/Taxol for the nodules on the lung. In August 2008 I underwent a Thoracostomy to remove the nodules in the lung. The lung specimen came back negative for sarcoma. My last scan in November 2008 showed no signs of cancer. I am currently working and feel very healthy and strong. I speak life to myself each and every day, because Death is in the power of the tongue. So for all of you who struggle with this devastating illness, know that you are not alone. God will walk with you, speak life to yourself, speak healing to yourself, claim nothing of this illness and it to shall pass. Walk by faith and not by site, you can make it. I would like to help support those who are going through, so please let me know how I can become a member of the NLMSF.
How did you hear about this site? Found this site just by surfing the internet
Name: Sharon Gavin
Email Address: SVGINCHRIST@aol.com
Web site URL:
Comments: I was diagnosed with LMS in November 2007 and underwent a total abdominal hysterectomy at Rush University/Medical Center. I had pelvic radiation(28)treatments for the cancer that returned in the vagina along with a combination of Chemo- Carbo/Taxol for the nodules on the lung. In August 2008 I underwent a Thoracostomy to remove the nodules in the lung. The lung specimen came back negative for sarcoma. My last scan in November 2008 showed no signs of cancer. I am currently working and feel very healthy and strong. I speak life to myself each and every day, because Death is in the power of the tongue. So for all of you who struggle with this devastating illness, know that you are not alone. God will walk with you, speak life to yourself, speak healing to yourself, claim nothing of this illness and it to shall pass. Walk by faith and not by site, you can make it. I would like to help support those who are going through, so please let me know how I can become a member of the NLMSF.
How did you hear about this site? Found this site just by surfing the internet
submitted on February 13, 2009 8:07 AM EST
Name: Lydia Santoni WIlliams
Email Address: lsanlaw@aol.com
Web site URL: http://rise-community-services.org
Comments: I send love and hope to all the survivors of this devastating illness. To our dear friend , Daisy we wish you a speedy rcovery and send our love and best wishes! We know you can beat this!
How did you hear about this site? Daisy Alicia Rivera
Name: Lydia Santoni WIlliams
Email Address: lsanlaw@aol.com
Web site URL: http://rise-community-services.org
Comments: I send love and hope to all the survivors of this devastating illness. To our dear friend , Daisy we wish you a speedy rcovery and send our love and best wishes! We know you can beat this!
How did you hear about this site? Daisy Alicia Rivera
submitted on February 12, 2009 12:57 PM EST
Name: Stacy Hartnagel
Email Address: sexyassmoma9@aol.com
Web site URL:
Comments: I support the petition for Leiomyosarcoma Awareness
How did you hear about this site? Daisy Rivera Alicea
Name: Stacy Hartnagel
Email Address: sexyassmoma9@aol.com
Web site URL:
Comments: I support the petition for Leiomyosarcoma Awareness
How did you hear about this site? Daisy Rivera Alicea
submitted on February 11, 2009 12:07 AM EST
Name: Sally McLean
Email Address: ray.mclean@leadingteams.net.au
Web site URL:
Comments: I was diagnosed with lieomyosarcoma after routine surgery for a hysterectomy in January 2007. One of 4 fibroids was cancerous. Following a PET scan(immediately after diagnosis) tumours in my lungs were apparent. I had 4 cycles of chemo - adriamycin, ifosfamide & mesna. The tumours in my lungs decreased, but within 6 months had doubled in size. I had both tumours removed, surgery was February & April 2008. Although prognosis isn't great I currently feel well. I have been fortunate that I have not had to return to work & I spend time daily on my fitness including bootcamp, gym, walking & playing basketball. I have no doubt general fitness has been of great benefit. I live in Ballarat a regional town in Victoria, Australia. I find it very difficult to get any information & there are no support groups here that I know of for LMS. When I contacted the Australian Cancer Council I was told that because LMS patients generally have a short life span and because their are so few cases in Australia there was no specific group for LMS. It is greatb to find you & I'm sure I will visit your sight regularly.
How did you hear about this site? searching the net
Name: Sally McLean
Email Address: ray.mclean@leadingteams.net.au
Web site URL:
Comments: I was diagnosed with lieomyosarcoma after routine surgery for a hysterectomy in January 2007. One of 4 fibroids was cancerous. Following a PET scan(immediately after diagnosis) tumours in my lungs were apparent. I had 4 cycles of chemo - adriamycin, ifosfamide & mesna. The tumours in my lungs decreased, but within 6 months had doubled in size. I had both tumours removed, surgery was February & April 2008. Although prognosis isn't great I currently feel well. I have been fortunate that I have not had to return to work & I spend time daily on my fitness including bootcamp, gym, walking & playing basketball. I have no doubt general fitness has been of great benefit. I live in Ballarat a regional town in Victoria, Australia. I find it very difficult to get any information & there are no support groups here that I know of for LMS. When I contacted the Australian Cancer Council I was told that because LMS patients generally have a short life span and because their are so few cases in Australia there was no specific group for LMS. It is greatb to find you & I'm sure I will visit your sight regularly.
How did you hear about this site? searching the net
submitted on February 6, 2009 4:07 PM EST
Name: Rosalie Phelan
Email Address:
Web site URL:
Comments: Friend of a survivor
How did you hear about this site?
Name: Rosalie Phelan
Email Address:
Web site URL:
Comments: Friend of a survivor
How did you hear about this site?
submitted on February 5, 2009 10:18 AM EST
Name: Jeffrey P. Cowie
Email Address: jpcowie@mac.com
Web site URL:
Comments: May God bless Gayer Gardner Dominick, who, having died from this dreaded disease, lived a most wonderful and giving life.
How did you hear about this site? The Dominick Family - Whitefish, MT
Name: Jeffrey P. Cowie
Email Address: jpcowie@mac.com
Web site URL:
Comments: May God bless Gayer Gardner Dominick, who, having died from this dreaded disease, lived a most wonderful and giving life.
How did you hear about this site? The Dominick Family - Whitefish, MT
submitted on February 3, 2009 11:46 AM EST
Name: Heidi Meachum Washington
Email Address: newsongbible@aol.com
Web site URL:
Comments: One of my long lost friends was diagnosed in June, 2008. I am supporting her and fighting with her and for her!
How did you hear about this site? A friend who is fighting the disease
Name: Heidi Meachum Washington
Email Address: newsongbible@aol.com
Web site URL:
Comments: One of my long lost friends was diagnosed in June, 2008. I am supporting her and fighting with her and for her!
How did you hear about this site? A friend who is fighting the disease
submitted on January 30, 2009 1:06 PM EST
Name: Wendi Moffett
Email Address: wendim@ncb-builders.com
Web site URL:
Comments: Kieara White - the most amazing and beautiful person in the world - you will be extremely missed.
How did you hear about this site? The White family
Name: Wendi Moffett
Email Address: wendim@ncb-builders.com
Web site URL:
Comments: Kieara White - the most amazing and beautiful person in the world - you will be extremely missed.
How did you hear about this site? The White family
submitted on January 19, 2009 10:33 PM EST
Name: Jennifer Heaster
Email Address: jheaster27@yahoo.com
Web site URL:
Comments: Interested in LMS info for my mom was diagnosed in 12-07 and recent metastases on liver and lungs Stage 4
How did you hear about this site? My grandmother
Name: Jennifer Heaster
Email Address: jheaster27@yahoo.com
Web site URL:
Comments: Interested in LMS info for my mom was diagnosed in 12-07 and recent metastases on liver and lungs Stage 4
How did you hear about this site? My grandmother
submitted on January 19, 2009 5:34 PM EST
Name: Richard H. Tourtelot
Email Address: rhturtle@hotmail.com
Web site URL:
Comments: I'm have LMS. Just looking around at sites.
How did you hear about this site?
Name: Richard H. Tourtelot
Email Address: rhturtle@hotmail.com
Web site URL:
Comments: I'm have LMS. Just looking around at sites.
How did you hear about this site?
submitted on January 12, 2009 4:33 PM EST
Name: Ginnie
Email Address: Ginnaye1@aol.com
Web site URL:
Comments: Was diag. with ULMS July 2008. Had back surgery July 2008 & radiation to right ribs and back in Aug. 2008. Oct. 1 total hystorectomy with 5lb. tumor removed. CT scan Dec. 29 shows tumors in 3 lumph nodes and now trying to decide if I want to try chemo. Love your website. Very informative. Pray for all who have this rare cancer. God Bless
How did you hear about this site? searching the web
Name: Ginnie
Email Address: Ginnaye1@aol.com
Web site URL:
Comments: Was diag. with ULMS July 2008. Had back surgery July 2008 & radiation to right ribs and back in Aug. 2008. Oct. 1 total hystorectomy with 5lb. tumor removed. CT scan Dec. 29 shows tumors in 3 lumph nodes and now trying to decide if I want to try chemo. Love your website. Very informative. Pray for all who have this rare cancer. God Bless
How did you hear about this site? searching the web
submitted on January 10, 2009 10:17 PM EST
Name: Liz Elovitz
Email Address: eee127@yahoo.com
Web site URL:
Comments: My mom just got diagnosed with LMS.Please Pray for her recovery. Liz
How did you hear about this site?
Name: Liz Elovitz
Email Address: eee127@yahoo.com
Web site URL:
Comments: My mom just got diagnosed with LMS.Please Pray for her recovery. Liz
How did you hear about this site?
submitted on January 8, 2009 12:52 PM EST
Name: Nancy Grubbs
Email Address: mymimi5@hotmail.com
Web site URL:
Comments: My dear friend has LMS, I was looking for help, and trying to understand this horrible dragon.I live in the Dallas area and she lives in the Paris, Tx.area. She is a real fighter and a true child of God. We really do need to get the word out for more research.
How did you hear about this site? surfing
Name: Nancy Grubbs
Email Address: mymimi5@hotmail.com
Web site URL:
Comments: My dear friend has LMS, I was looking for help, and trying to understand this horrible dragon.I live in the Dallas area and she lives in the Paris, Tx.area. She is a real fighter and a true child of God. We really do need to get the word out for more research.
How did you hear about this site? surfing
submitted on December 31, 2008 3:00 PM EST
Name: Sonia
Email Address: sjan0427@yahoo.com
Web site URL:
Comments:
How did you hear about this site? searching thru the internet and myspace
Name: Sonia
Email Address: sjan0427@yahoo.com
Web site URL:
Comments:
How did you hear about this site? searching thru the internet and myspace
submitted on December 20, 2008 2:47 PM EST
Name: Kim W. Garrett
Email Address: KWGarr@aol.com
Web site URL:
Comments:
How did you hear about this site?
Name: Kim W. Garrett
Email Address: KWGarr@aol.com
Web site URL:
Comments:
How did you hear about this site?
submitted on November 30, 2008 10:43 AM EST
Name: Joe Riccardo
Email Address: jfriccardo@aol.com
Web site URL:
Comments: My Father passed away in 1975 after an 11 yr fight with LeioMyoSarcoma, Metastic
How did you hear about this site? Google
Name: Joe Riccardo
Email Address: jfriccardo@aol.com
Web site URL:
Comments: My Father passed away in 1975 after an 11 yr fight with LeioMyoSarcoma, Metastic
How did you hear about this site? Google
submitted on November 21, 2008 11:00 AM EST
Name: Kristina Johnson
Email Address: kristina.j@charter.net
Web site URL:
Comments: My mother-in-law has LMS. She is in the hosptial recovery from her second surgery to remove the cancer. She went three years in remission, and I am afraid this time was worse than the last.
How did you hear about this site? Google
Name: Kristina Johnson
Email Address: kristina.j@charter.net
Web site URL:
Comments: My mother-in-law has LMS. She is in the hosptial recovery from her second surgery to remove the cancer. She went three years in remission, and I am afraid this time was worse than the last.
How did you hear about this site? Google
submitted on November 16, 2008 2:41 AM EST
Name: J OHara
Email Address: mrs_puddin12@yahoo.co.uk
Web site URL:
Comments: my husband was diagnosed in2006 had 3 lots of surgery trying to carry on as normal.
How did you hear about this site?
Name: J OHara
Email Address: mrs_puddin12@yahoo.co.uk
Web site URL:
Comments: my husband was diagnosed in2006 had 3 lots of surgery trying to carry on as normal.
How did you hear about this site?
submitted on November 8, 2008 12:11 AM EST
Name: louise swindoll
Email Address: louiseswindoll@bellsouth.net
Web site URL:
Comments: I was diag. with leiomysarcoma 11-05, had surgary and radiation. Reoccured 07-07 in my lungs..I have had 10 chemo treatments of Doxil..last ct scan showed no new spots and ones present were smaller. I am very interested in any information that is avalable.
How did you hear about this site? scanning internet
Name: louise swindoll
Email Address: louiseswindoll@bellsouth.net
Web site URL:
Comments: I was diag. with leiomysarcoma 11-05, had surgary and radiation. Reoccured 07-07 in my lungs..I have had 10 chemo treatments of Doxil..last ct scan showed no new spots and ones present were smaller. I am very interested in any information that is avalable.
How did you hear about this site? scanning internet
submitted on November 5, 2008 3:49 PM EST
Name: Laurie Kaneff
Email Address: Lark110@aol.com
Web site URL:
Comments: Diagnosed Sept. 2008 Uterine leiomyosarcoma.
How did you hear about this site? Internet search
Name: Laurie Kaneff
Email Address: Lark110@aol.com
Web site URL:
Comments: Diagnosed Sept. 2008 Uterine leiomyosarcoma.
How did you hear about this site? Internet search
submitted on October 23, 2008 12:50 PM EDT
Name: Julie Minoso
Email Address: juliem@yadtel.com
Web site URL:
Comments: Hello, I'm a female Hispanic living in North Carolina diagnosed with uterine Lyomiosarcoma on late September,2007. I had a surgery to remove the cancer and my uterus on Ocotber 31, 2007. Then in January, 2008 I had another surgery to remove my ovaries and to test my lymp nodes. The result came back negative. I also took quimo for 3 months (taxe-gimsar).I go back for a ct-scan every three months and everything seems to be ok. On the mean time all I do is trust God with all my heart and when I feel fear, I always remember that God's love and mercy is bigger than any cancer.
How did you hear about this site? found through Google
Name: Julie Minoso
Email Address: juliem@yadtel.com
Web site URL:
Comments: Hello, I'm a female Hispanic living in North Carolina diagnosed with uterine Lyomiosarcoma on late September,2007. I had a surgery to remove the cancer and my uterus on Ocotber 31, 2007. Then in January, 2008 I had another surgery to remove my ovaries and to test my lymp nodes. The result came back negative. I also took quimo for 3 months (taxe-gimsar).I go back for a ct-scan every three months and everything seems to be ok. On the mean time all I do is trust God with all my heart and when I feel fear, I always remember that God's love and mercy is bigger than any cancer.
How did you hear about this site? found through Google
submitted on October 2, 2008 10:01 PM EDT
Name: Christine Oguinn
Email Address: aranamoonslave@yahoo.com
Web site URL:
Comments: On May 24, 2008 I lost my dad to LeioMyoSarcoma
How did you hear about this site? doing research for a schol project
Name: Christine Oguinn
Email Address: aranamoonslave@yahoo.com
Web site URL:
Comments: On May 24, 2008 I lost my dad to LeioMyoSarcoma
How did you hear about this site? doing research for a schol project
submitted on September 29, 2008 8:34 AM EDT
Name: Jill
Email Address: Murray
Web site URL: Comments: My best friend, Linda, was just diagnosed with LeioMyoSarcoma. My prayers go out to all affected by this disease.
How did you hear about this site? From my friend Linda.
Name: Jill
Email Address: Murray
Web site URL: Comments: My best friend, Linda, was just diagnosed with LeioMyoSarcoma. My prayers go out to all affected by this disease.
How did you hear about this site? From my friend Linda.
submitted on September 15, 2008 4:48 PM EDT
Name: Eva Dreckmann
Email Address: eva.dreckmann@comcast.net
Web site URL:
Comments: My husband was diagnosed with NLM in May. Is there any support groups to help our family or what treatments have been successful, if any. He did have two Chemo treatments which left him extremely weak which he hasn't been able to recover from. He did have radiation for a tumor on the spine which was successful in May but this cancer is surely a quick death sentence.
How did you hear about this site? Just looked up the cancer than he was diagnosed with
Name: Eva Dreckmann
Email Address: eva.dreckmann@comcast.net
Web site URL:
Comments: My husband was diagnosed with NLM in May. Is there any support groups to help our family or what treatments have been successful, if any. He did have two Chemo treatments which left him extremely weak which he hasn't been able to recover from. He did have radiation for a tumor on the spine which was successful in May but this cancer is surely a quick death sentence.
How did you hear about this site? Just looked up the cancer than he was diagnosed with
submitted on September 13, 2008 1:17 PM EDT Name: Dena Snider
Email Address: dsnider2040@yahoo.com
Web site URL: Comments: The Dr.s at Baylor University Nedical Center suspects that my husband has Leiomysarcoma, although the pathologists are still debating.
How did you hear about this site? Google
Email Address: dsnider2040@yahoo.com
Web site URL: Comments: The Dr.s at Baylor University Nedical Center suspects that my husband has Leiomysarcoma, although the pathologists are still debating.
How did you hear about this site? Google
submitted on September 6, 2008 12:32 AM EDT
Name: Margie Gibbs
Email Address: mgibbs@eastex.net
Web site URL:
Comments: This is a great informational site. It is great to hear from others with the same cancer. I have had 5 diagnoses with the final one being LMS at MD Anderson. I will begin chemo therapy with Gemzar/Taxotere next week. The lesion is on the pelvic bone. The diagnosis has been difficult because of the bone involvment. I was diagnosed in June with cancer cells. Thru CTs, MRIs, Bone scans, PET scans, it has been determined that this is the only site.
How did you hear about this site? Surfing the net.
Name: Margie Gibbs
Email Address: mgibbs@eastex.net
Web site URL:
Comments: This is a great informational site. It is great to hear from others with the same cancer. I have had 5 diagnoses with the final one being LMS at MD Anderson. I will begin chemo therapy with Gemzar/Taxotere next week. The lesion is on the pelvic bone. The diagnosis has been difficult because of the bone involvment. I was diagnosed in June with cancer cells. Thru CTs, MRIs, Bone scans, PET scans, it has been determined that this is the only site.
How did you hear about this site? Surfing the net.
submitted on August 26, 2008 7:22 PM EDT
Name: Kathy Harris
Email Address: kmh306@hotmail.com
Web site URL: www.nlmsf.org
Comments:
How did you hear about this site? found during internet research
Name: Kathy Harris
Email Address: kmh306@hotmail.com
Web site URL: www.nlmsf.org
Comments:
How did you hear about this site? found during internet research
submitted on August 24, 2008 7:05 PM EDT
Name: Olga
Email Address: Francis1363@msn.com
Web site URL:
Comments:
How did you hear about this site? Trying to learn more on this type of cancer.
Name: Olga
Email Address: Francis1363@msn.com
Web site URL:
Comments:
How did you hear about this site? Trying to learn more on this type of cancer.
submitted on August 21, 2008 10:39 PM EDT
Name: MARIA
Email Address: JEZENIA74@HOTMAIL.COM
Web site URL:
Comments: I WILL BE VISITING YOUR SITE, GOD BLESS!
How did you hear about this site? LOOKING FOR MORE INFOMATION FOR A LOVED ONE WITH THIS CONDITION
Name: MARIA
Email Address: JEZENIA74@HOTMAIL.COM
Web site URL:
Comments: I WILL BE VISITING YOUR SITE, GOD BLESS!
How did you hear about this site? LOOKING FOR MORE INFOMATION FOR A LOVED ONE WITH THIS CONDITION
submitted on August 18, 2008 2:59 PM EDT
Name: Cathie Cardwell
Email Address: cardwell@comcast.net
Web site URL: enlightened-by-cancer.net
Comments: I was diagnosed with Uterine LMS 9/7/07. I went through 7 months of Gem/Tax. I have had 2 scans since I my chemo has been discontinued and grateful to say I am NED! Please visit my website...I didn't have the opportunity to have someone to talk to since this cancer is so rare. My website was my outlet and hopfully will help someone out there that is going through what we with LMS have benn through. I wish all who have had to deal with cancer...wellness. Peace, Cathie
How did you hear about this site? LMS List Serve
Name: Cathie Cardwell
Email Address: cardwell@comcast.net
Web site URL: enlightened-by-cancer.net
Comments: I was diagnosed with Uterine LMS 9/7/07. I went through 7 months of Gem/Tax. I have had 2 scans since I my chemo has been discontinued and grateful to say I am NED! Please visit my website...I didn't have the opportunity to have someone to talk to since this cancer is so rare. My website was my outlet and hopfully will help someone out there that is going through what we with LMS have benn through. I wish all who have had to deal with cancer...wellness. Peace, Cathie
How did you hear about this site? LMS List Serve
submitted on August 17, 2008 12:30 AM EDT
Name: Jena Lattaro
Email Address: Jenalattaro@yahoo.com
Web site URL:
Comments: I have leiomyosarcoma and found this by being on the ACOR LMS list serve
How did you hear about this site?
Name: Jena Lattaro
Email Address: Jenalattaro@yahoo.com
Web site URL:
Comments: I have leiomyosarcoma and found this by being on the ACOR LMS list serve
How did you hear about this site?
submitted on August 14, 2008 3:37 PM EDT
Name: Shawn Gerrick-Davis
Email Address: Shawn_Davis001@comcast.net
Web site URL: Comments: I was recently diagnosed with leiyomyosarcoma.
How did you hear about this site? surfing
Name: Shawn Gerrick-Davis
Email Address: Shawn_Davis001@comcast.net
Web site URL: Comments: I was recently diagnosed with leiyomyosarcoma.
How did you hear about this site? surfing
submitted on August 6, 2008 1:57 PM EDT
Name: Alexandra
Email Address: jandro257@gmail.com
Web site URL:
Comments: I would like to purchase from your online store to help support the fight against LMS. Help us slay the dragon!
How did you hear about this site? Online Search for LMS info
Name: Alexandra
Email Address: jandro257@gmail.com
Web site URL:
Comments: I would like to purchase from your online store to help support the fight against LMS. Help us slay the dragon!
How did you hear about this site? Online Search for LMS info
submitted on July 31, 2008 8:49 PM EDT
Name: deb george
Email Address: opink4me@aol.com
Web site URL:
Comments: DONOT GIVE UPIHAVE BEEN ON GEMSAR AND TEXATERE FOR 3 MONTHS AND MY TUMORS ARE SHRINKING IN MY LUNGS AND LIVER.SOME OF MY TUMORS HAVE DISAPPEARED IN MY LUNGS.I HAVE NO TUMORS IN MY LEFT ARM WHERE IT STARTED.THERE IS HOPE FOR US PLEASE DO NOT GIVE UP. I SEE DR. HARTNER IN PHILADELPHIA HE IS A WONDERFUL DOCTOR. ANY QUESTIONS PLEASE EMAIL ME.
How did you hear about this site? SURFING
Name: deb george
Email Address: opink4me@aol.com
Web site URL:
Comments: DONOT GIVE UPIHAVE BEEN ON GEMSAR AND TEXATERE FOR 3 MONTHS AND MY TUMORS ARE SHRINKING IN MY LUNGS AND LIVER.SOME OF MY TUMORS HAVE DISAPPEARED IN MY LUNGS.I HAVE NO TUMORS IN MY LEFT ARM WHERE IT STARTED.THERE IS HOPE FOR US PLEASE DO NOT GIVE UP. I SEE DR. HARTNER IN PHILADELPHIA HE IS A WONDERFUL DOCTOR. ANY QUESTIONS PLEASE EMAIL ME.
How did you hear about this site? SURFING
submitted on July 29, 2008 8:34 PM EDT
Name: Rick Bushman
Email Address: rickjuliebushman@yahoo.com
Web site URL:
Comments: Correction on email address.
How did you hear about this site? Surfing
Name: Rick Bushman
Email Address: rickjuliebushman@yahoo.com
Web site URL:
Comments: Correction on email address.
How did you hear about this site? Surfing
submitted on July 29, 2008 8:31 PM EDT
Name: Rick Bushman
Email Address: rickjuliebushman
Web site URL:
Comments: I was diagnosed with LMS early in 2008 (lung slide sent to Mayo Clinic, AZ) and since then have been to MD Anderson who looked at the same tissue sample(s). Diagnosis has changed to sarcoma of unspecified origin. That is great since there are 50 subtypes. I have gone through chemotherapy(adriamycin, iphosfamide and mesna) there are multiple spots in both lungs and no primary site has been found after PET/CT's, CT's, EGD, colonoscopy with ultrasound and MRI. The multiple spots on the lungs are 1.5mm and scattered. There was not much change after chemo so we are taking a wait and see approach with a CT in 6 weeks. I have a beautiful and supportive wife, and a georgeous 6 yr. old little girl.
How did you hear about this site? Surfing
Name: Rick Bushman
Email Address: rickjuliebushman
Web site URL:
Comments: I was diagnosed with LMS early in 2008 (lung slide sent to Mayo Clinic, AZ) and since then have been to MD Anderson who looked at the same tissue sample(s). Diagnosis has changed to sarcoma of unspecified origin. That is great since there are 50 subtypes. I have gone through chemotherapy(adriamycin, iphosfamide and mesna) there are multiple spots in both lungs and no primary site has been found after PET/CT's, CT's, EGD, colonoscopy with ultrasound and MRI. The multiple spots on the lungs are 1.5mm and scattered. There was not much change after chemo so we are taking a wait and see approach with a CT in 6 weeks. I have a beautiful and supportive wife, and a georgeous 6 yr. old little girl.
How did you hear about this site? Surfing
submitted on July 27, 2008 7:15 PM EDT
Name: sandra Sevcech
Email Address: SandraLSev@aol.com
Web site URL:
Comments: I was diagnoised with lms in may it was found in a soft mass tissue in my leg but a a knot in my abd does worry me my surgical onocologist does not seem concerned should I get a second oppinion I do like my doctor he seems great but I worry so much
How did you hear about this site?
Name: sandra Sevcech
Email Address: SandraLSev@aol.com
Web site URL:
Comments: I was diagnoised with lms in may it was found in a soft mass tissue in my leg but a a knot in my abd does worry me my surgical onocologist does not seem concerned should I get a second oppinion I do like my doctor he seems great but I worry so much
How did you hear about this site?
submitted on July 23, 2008 3:44 PM EDT
Name: Karen Maupin
Email Address: grannymaupin@yahoo.com
Web site URL:
Comments: Just lost my sister Barb to lms,hopeing to be able tohelp spread the word about this dragon
How did you hear about this site? checking out the picture that my neice placed on your site
Name: Karen Maupin
Email Address: grannymaupin@yahoo.com
Web site URL:
Comments: Just lost my sister Barb to lms,hopeing to be able tohelp spread the word about this dragon
How did you hear about this site? checking out the picture that my neice placed on your site
submitted on July 21, 2008 11:58 AM EDT
Name: Laura Copeland
Email Address: heritageinteriors@btconnect.com
Web site URL:
Comments: I have recently lost my best friend to this cancer aged just thirty tears old. She leaves three young children. it shocked me the lack of knowledge of this cancer and the lack of research going on at this time in the UK. They stood back and did nothing. I do not want one more person to suffer like she did
How did you hear about this site?
Name: Laura Copeland
Email Address: heritageinteriors@btconnect.com
Web site URL:
Comments: I have recently lost my best friend to this cancer aged just thirty tears old. She leaves three young children. it shocked me the lack of knowledge of this cancer and the lack of research going on at this time in the UK. They stood back and did nothing. I do not want one more person to suffer like she did
How did you hear about this site?
submitted on July 21, 2008 11:00 AM EDT Name: Charlene McMurtry
Email Address: charlene@shankslaw.org
Web site URL:
Comments: I was diagnosed with LMS of the left kidney (12 cm tumor)which had grown through the renal vein up the vena cava and into my heart. Had surgery in Feb. 08. Scans in May 08 were clear. First appt tomorrow (7-22-08) at MD Anderson. Not sure what happens now. I am guessing cat scans 4 times a year and chemo if it reappears. Am going to check on clinical trials at MD Anderson.
How did you hear about this site? surfing
Email Address: charlene@shankslaw.org
Web site URL:
Comments: I was diagnosed with LMS of the left kidney (12 cm tumor)which had grown through the renal vein up the vena cava and into my heart. Had surgery in Feb. 08. Scans in May 08 were clear. First appt tomorrow (7-22-08) at MD Anderson. Not sure what happens now. I am guessing cat scans 4 times a year and chemo if it reappears. Am going to check on clinical trials at MD Anderson.
How did you hear about this site? surfing
submitted on July 12, 2008 10:45 AM EDT
Name: ELISHA ANN MIMS Email Address: EAMIMS@MSN.COM
Web site URL:
Comments: My oldest son, Joey, was diagnosed with LMS of the brain, in 2005 at the age of 15. He has been through a lot of different chemos and even the gamma knife radiology treatment. It seems that everytime we get a little bit of good news that a chemo is helping this horrible monster will becomes immune to it and we are searching for another that may help. When first diagnosed the doctors gave us the news that there is not a lot of research for them to use for his type and that there were only three other cases involving 2-older women and a little boy that was 11 years old and they didn't make it the first year. Joey has been through a lot with this horrible cancer, too much to even get into, but he is truly a hero for dealing with this as well as he has after all these years and says that he does it for me and his 2-brothers and sister.
How did you hear about this site? Was just sitting here doing some more research on this to help me better understand and deal with this for me and my children.
Name: ELISHA ANN MIMS Email Address: EAMIMS@MSN.COM
Web site URL:
Comments: My oldest son, Joey, was diagnosed with LMS of the brain, in 2005 at the age of 15. He has been through a lot of different chemos and even the gamma knife radiology treatment. It seems that everytime we get a little bit of good news that a chemo is helping this horrible monster will becomes immune to it and we are searching for another that may help. When first diagnosed the doctors gave us the news that there is not a lot of research for them to use for his type and that there were only three other cases involving 2-older women and a little boy that was 11 years old and they didn't make it the first year. Joey has been through a lot with this horrible cancer, too much to even get into, but he is truly a hero for dealing with this as well as he has after all these years and says that he does it for me and his 2-brothers and sister.
How did you hear about this site? Was just sitting here doing some more research on this to help me better understand and deal with this for me and my children.
submitted on July 5, 2008 7:23 PM EDT
Name: Jim Crowhurst
Email Address: jacrow@swbell.net
Web site URL:
Comments:
How did you hear about this site? Thru LMS Sarcoma email.
Name: Jim Crowhurst
Email Address: jacrow@swbell.net
Web site URL:
Comments:
How did you hear about this site? Thru LMS Sarcoma email.
submitted on June 20, 2008 1:39 PM EDT
Name: anne begg
Email Address: annebegg529@btinternet.com
Web site URL:
Comments: just been diagnosed
How did you hear about this site?
Name: anne begg
Email Address: annebegg529@btinternet.com
Web site URL:
Comments: just been diagnosed
How did you hear about this site?
submitted on June 10, 2008 5:33 PM EDT
Name: Renee Chambers
Email Address: chambersj0464@bellsouth.net
Web site URL:
Comments: My husband has LMS since Dec 2007. Main tumor in back muscle on right kidney surrounding the arotia, on liver, lungs and bones and surgery is not and option. Consulted MD Anderson, but no help there. Taking chemo gem/tax. Main tumor has changed from 15 cm to 9cm. We are trying to maintain good quality of life and praying for healing.
How did you hear about this site?
Name: Renee Chambers
Email Address: chambersj0464@bellsouth.net
Web site URL:
Comments: My husband has LMS since Dec 2007. Main tumor in back muscle on right kidney surrounding the arotia, on liver, lungs and bones and surgery is not and option. Consulted MD Anderson, but no help there. Taking chemo gem/tax. Main tumor has changed from 15 cm to 9cm. We are trying to maintain good quality of life and praying for healing.
How did you hear about this site?
submitted on June 6, 2008 12:19 PM EDT
Name: Janine Ging
Email Address: joging18@aol.com
Web site URL:
Comments: Thank you so much, I have received my ribbons/cards! This will be a great addition to Relay For Life!
How did you hear about this site?
Name: Janine Ging
Email Address: joging18@aol.com
Web site URL:
Comments: Thank you so much, I have received my ribbons/cards! This will be a great addition to Relay For Life!
How did you hear about this site?
submitted on May 22, 2008 10:09 PM EDT
Name: PAUL OLDHAM
Email Address: pfojr1953@comcast,net
Web site URL:
Comments:
How did you hear about this site? my wife
Name: PAUL OLDHAM
Email Address: pfojr1953@comcast,net
Web site URL:
Comments:
How did you hear about this site? my wife
submitted on May 20, 2008 4:11 PM EDT
Name: Gina Scalise
Email Address: ginatigger2@yahoo.com
Web site URL:
Comments: How wonderful to read about some of your guests who are still alive and fighting this terrible disease. My husband Rob passed away 11 years ago from LMS, and though my life is good now, I miss him still. Keep fighting everyone...your in my prayers.
How did you hear about this site? random web search
Name: Gina Scalise
Email Address: ginatigger2@yahoo.com
Web site URL:
Comments: How wonderful to read about some of your guests who are still alive and fighting this terrible disease. My husband Rob passed away 11 years ago from LMS, and though my life is good now, I miss him still. Keep fighting everyone...your in my prayers.
How did you hear about this site? random web search
submitted on May 20, 2008 6:07 AM EDT
Name: PAULA OLDHAM
Email Address: PJO61@COMCAST.NET
Web site URL:
Comments: I have uterine leiomyosarcoma. I was diagnosed a year and half ago. I underwent 6 months of chemo at Dana Farber. Currently everything looks ok. I go every 3 months for a CT scan. I found out about your website from a friend who had one of your postcards and ribbon. The odd thing about this is a women (that I don't even know)who lived around the corner from me just died from leiomyosarcoma. How coincidental considering how rare it is and she lived right in my neighborhood. If you could possibly send me 10 ribbons that would be great. Paula Oldham 45 Riverside Ave Quincy MA 02169
How did you hear about this site? friend
Name: PAULA OLDHAM
Email Address: PJO61@COMCAST.NET
Web site URL:
Comments: I have uterine leiomyosarcoma. I was diagnosed a year and half ago. I underwent 6 months of chemo at Dana Farber. Currently everything looks ok. I go every 3 months for a CT scan. I found out about your website from a friend who had one of your postcards and ribbon. The odd thing about this is a women (that I don't even know)who lived around the corner from me just died from leiomyosarcoma. How coincidental considering how rare it is and she lived right in my neighborhood. If you could possibly send me 10 ribbons that would be great. Paula Oldham 45 Riverside Ave Quincy MA 02169
How did you hear about this site? friend
submitted on May 14, 2008 1:45 AM EDT
Name: JD Smith
Email Address: bkjd@cox.net
Web site URL:
Comments: 05/13/08 Well lets see. My wife found this site and thought it a good idea to sign in to speak with others to see what their experience has been. I found out last week that I have LMS in the center of my stomach area. It does not seemed to have spread any further and is about 9x9 centimeters in size. I guess its wrapped around too many other organs/vessels to operate so we are going to MD Anderson in Houston next week to see what they think we should do. I guess its rather rare to begin with and being that it can't be surgically removed presents additional problems. Are there any guys out there who have similar experience and can provide some insight for me?
How did you hear about this site? surfing about LMS
Name: JD Smith
Email Address: bkjd@cox.net
Web site URL:
Comments: 05/13/08 Well lets see. My wife found this site and thought it a good idea to sign in to speak with others to see what their experience has been. I found out last week that I have LMS in the center of my stomach area. It does not seemed to have spread any further and is about 9x9 centimeters in size. I guess its wrapped around too many other organs/vessels to operate so we are going to MD Anderson in Houston next week to see what they think we should do. I guess its rather rare to begin with and being that it can't be surgically removed presents additional problems. Are there any guys out there who have similar experience and can provide some insight for me?
How did you hear about this site? surfing about LMS
submitted on May 12, 2008 9:27 PM EDT
Name: Vivian Walker
Email Address: daneebeep@msn.com
Web site URL:
Comments: My sister was just diagnosed with this dreaded cancer. Im on line looking for information and inspiration.
How did you hear about this site? Random internet find
Name: Vivian Walker
Email Address: daneebeep@msn.com
Web site URL:
Comments: My sister was just diagnosed with this dreaded cancer. Im on line looking for information and inspiration.
How did you hear about this site? Random internet find
submitted on May 9, 2008 7:59 PM EDT
Name: ann trentsch
Email Address: short40beach@yahoo.com
Web site URL:
Comments: Have been on this website since my daughter was told she had a recurrence for LMS after being in remission for 13yrs. She has been fighting for 3yrs and will continue to fight this dragon. Website has helped me greatly. Keep it up.
How did you hear about this site? google
Name: ann trentsch
Email Address: short40beach@yahoo.com
Web site URL:
Comments: Have been on this website since my daughter was told she had a recurrence for LMS after being in remission for 13yrs. She has been fighting for 3yrs and will continue to fight this dragon. Website has helped me greatly. Keep it up.
How did you hear about this site? google
submitted on May 9, 2008 6:14 PM EDT
Name: Ann McPartland Email Address: macmoran1@aol.com
Web site URL: Comments: I have leiomyosarcoma. I have been deal with this since 11/2003.
How did you hear about this site? My sister. She has been very supportive.
Name: Ann McPartland Email Address: macmoran1@aol.com
Web site URL: Comments: I have leiomyosarcoma. I have been deal with this since 11/2003.
How did you hear about this site? My sister. She has been very supportive.
submitted on May 1, 2008 8:55 PM EDT
Name: DAB
Email Address: bellamiabuffa@comcast.net
Web site URL: myspace
Comments: I have an Aunt who was diagnosed with Leiomyosarcoma in July 2006 and as of May 2008, still trying to "Slay the Dragon". Your team here at NLMSF is amazing! Thank you for your hard work, determination and efforts to get the word out. Also, thank you for your words of encouragement when you contacted my Aunt personally.
How did you hear about this site? My Aunt
Name: DAB
Email Address: bellamiabuffa@comcast.net
Web site URL: myspace
Comments: I have an Aunt who was diagnosed with Leiomyosarcoma in July 2006 and as of May 2008, still trying to "Slay the Dragon". Your team here at NLMSF is amazing! Thank you for your hard work, determination and efforts to get the word out. Also, thank you for your words of encouragement when you contacted my Aunt personally.
How did you hear about this site? My Aunt
submitted on April 29, 2008 12:15 AM EDT
Name: Lonnie Cook
Email Address: lhcook@randolphcs.com
Web site URL:
Comments: I am living with LMS and visited your website.
How did you hear about this site? searched on website
Name: Lonnie Cook
Email Address: lhcook@randolphcs.com
Web site URL:
Comments: I am living with LMS and visited your website.
How did you hear about this site? searched on website
submitted on April 24, 2008 12:00 AM EDT
Name: Jan Bariski
Email Address: janbariski@yahoo.com
Web site URL:
Comments: I am thrilled to see new guests to our new website!! Dealing with LMS is so much easier when we can communicate with others who are fighting the same fight! Great website! X Jan Bariski
How did you hear about this site? NLMSF
Name: Jan Bariski
Email Address: janbariski@yahoo.com
Web site URL:
Comments: I am thrilled to see new guests to our new website!! Dealing with LMS is so much easier when we can communicate with others who are fighting the same fight! Great website! X Jan Bariski
How did you hear about this site? NLMSF
submitted on April 22, 2008 4:34 PM EDT
Name: Joanne Heitzman
Email Address: sea9jay@aol.com
Web site URL:
Comments: A wonderful site with lots of information for sharing. Great job. May 23 will be 3-year survivor and according to the Drs. I wasn't supposed to be here. Primary vaginal LMS, rare. Recurrence resulting in total pelvic exenteration with colostomy and urinary diversion and still learning the challenges! Mets to the lungs, using Bill Peeple's cocktail and very positive imaging and optimistic.
How did you hear about this site? Hugfest
Name: Joanne Heitzman
Email Address: sea9jay@aol.com
Web site URL:
Comments: A wonderful site with lots of information for sharing. Great job. May 23 will be 3-year survivor and according to the Drs. I wasn't supposed to be here. Primary vaginal LMS, rare. Recurrence resulting in total pelvic exenteration with colostomy and urinary diversion and still learning the challenges! Mets to the lungs, using Bill Peeple's cocktail and very positive imaging and optimistic.
How did you hear about this site? Hugfest
submitted on April 22, 2008 10:30 AM EDT
Name: Jo Ann Trowbridge
Email Address: jotrowbridge@att.net
Web site URL: Comments: Hysterectomy in 1994, uterus had LMS. 2006 again LMS returned with a mass behind the bladder, as big as your fist. 2007 LMS returns in the right ovarian vein. Again now in 2008 I'm going for more test, we think it is back in the vein. I live in Texas
How did you hear about this site? I sent for wristbracelet and the website was on the paper attached to the bracelet.
Name: Jo Ann Trowbridge
Email Address: jotrowbridge@att.net
Web site URL: Comments: Hysterectomy in 1994, uterus had LMS. 2006 again LMS returned with a mass behind the bladder, as big as your fist. 2007 LMS returns in the right ovarian vein. Again now in 2008 I'm going for more test, we think it is back in the vein. I live in Texas
How did you hear about this site? I sent for wristbracelet and the website was on the paper attached to the bracelet.
submitted on April 21, 2008 1:27 PM EDT
Name: AIDA QUEZADA
Email Address: AIDAQUEZADA1@AOL.COM
Web site URL:
Comments:
How did you hear about this site? LMS MESSAGE ROOM
Name: AIDA QUEZADA
Email Address: AIDAQUEZADA1@AOL.COM
Web site URL:
Comments:
How did you hear about this site? LMS MESSAGE ROOM
submitted on April 20, 2008 9:40 PM EDT
Name: Megan Bennett
Email Address: mbennett30@comcast.net
Web site URL:
Comments: CORRECTION: My father, Jim Bariski, passed away December 20, 2007.....not 2006. Sorry Jim.....how could I forget all of 2007 that we had with you.
How did you hear about this site?
Name: Megan Bennett
Email Address: mbennett30@comcast.net
Web site URL:
Comments: CORRECTION: My father, Jim Bariski, passed away December 20, 2007.....not 2006. Sorry Jim.....how could I forget all of 2007 that we had with you.
How did you hear about this site?
submitted on April 20, 2008 8:59 PM EDT
Name: Megan Bennett
Email Address: mbennett30@comcast.net
Web site URL:
Comments: My father, Jim Bariski, passed away December, 2006 after fighting 6 years with LMS. My mother, sister and I will continue to fight for a cure. We just got back from Hugfest '08 where I met so many wonderful survivors, caregivers and supporters of LMS. For any of you just finding this website and learning about LMS. Please sign the guest book and let us know you are out there. You are not alone. And hopefully working together we can slay this dragon once and for all.
How did you hear about this site?
Name: Megan Bennett
Email Address: mbennett30@comcast.net
Web site URL:
Comments: My father, Jim Bariski, passed away December, 2006 after fighting 6 years with LMS. My mother, sister and I will continue to fight for a cure. We just got back from Hugfest '08 where I met so many wonderful survivors, caregivers and supporters of LMS. For any of you just finding this website and learning about LMS. Please sign the guest book and let us know you are out there. You are not alone. And hopefully working together we can slay this dragon once and for all.
How did you hear about this site?
submitted on April 20, 2008 8:28 AM EDT
Name: sue price
Email Address: sandmprice@tiscali.co.uk
Web site URL:
Comments: forgot to mention we are in the process of sending Maurice's biopsy samples to the USA regards Sue Price UK
How did you hear about this site?
Name: sue price
Email Address: sandmprice@tiscali.co.uk
Web site URL:
Comments: forgot to mention we are in the process of sending Maurice's biopsy samples to the USA regards Sue Price UK
How did you hear about this site?
submitted on April 20, 2008 8:26 AM EDT
Name: sue price
Email Address: sandmprice@Tiscali.co.uk
Web site URL:
Comments: hi my husband passed away in july 2006 with lms unfortunatley no treatment was available in the UK and no research has been done either so monies from the funeral donations were sent to Lori and Ed to help Slay the Dragon hopefully. The new site is lovely and my husband Maurice's photo will soon be on LMS Angels thanks to Lori and Ed God bless all LMS survivors and their families love sue price UK
How did you hear about this site? internet
Name: sue price
Email Address: sandmprice@Tiscali.co.uk
Web site URL:
Comments: hi my husband passed away in july 2006 with lms unfortunatley no treatment was available in the UK and no research has been done either so monies from the funeral donations were sent to Lori and Ed to help Slay the Dragon hopefully. The new site is lovely and my husband Maurice's photo will soon be on LMS Angels thanks to Lori and Ed God bless all LMS survivors and their families love sue price UK
How did you hear about this site? internet
submitted on April 15, 2008 4:00 PM EDT
Name: Pamela Moore
Email Address: PamelaDMoore@gmail.com
Web site URL:
Comments: My mother, Sandra Duvall, passed away in 2004 of LMS. She had a hard 5 year battle. It started on her vena cava artery. She went through 8 surgeries, 3 chemotherapies, 2 radiations, and 3 clinical trials. Never give up...and dont let LMS win!
How did you hear about this site?
Name: Pamela Moore
Email Address: PamelaDMoore@gmail.com
Web site URL:
Comments: My mother, Sandra Duvall, passed away in 2004 of LMS. She had a hard 5 year battle. It started on her vena cava artery. She went through 8 surgeries, 3 chemotherapies, 2 radiations, and 3 clinical trials. Never give up...and dont let LMS win!
How did you hear about this site?
submitted on April 12, 2008 11:47 AM EDT
Name: Joni Fixel
Email Address: jomafix2@aol.com
Web site URL:
Comments: I am a 4 1/2 year survivor of LMS. I spoke to another survivor yesterday who was introduced to a 25 year survivor of LMS. For all of you who are newly diagnosed.........remember we CAN live with LMS for many years. Statistics are only as good as the numbers entered. We are people - not numbers. We can survive LMS.
How did you hear about this site? NLMSF Board
Name: Joni Fixel
Email Address: jomafix2@aol.com
Web site URL:
Comments: I am a 4 1/2 year survivor of LMS. I spoke to another survivor yesterday who was introduced to a 25 year survivor of LMS. For all of you who are newly diagnosed.........remember we CAN live with LMS for many years. Statistics are only as good as the numbers entered. We are people - not numbers. We can survive LMS.
How did you hear about this site? NLMSF Board
submitted on April 11, 2008 8:21 PM EDT
Name: Robert Lizakowski
Email Address: lizardo4sc@yahoo.com
Web site URL:
Comments: I recently was diagnosed with LMS. Scheduled to see an oncologist next Friday, April 18.
How did you hear about this site? Found through Google
Name: Robert Lizakowski
Email Address: lizardo4sc@yahoo.com
Web site URL:
Comments: I recently was diagnosed with LMS. Scheduled to see an oncologist next Friday, April 18.
How did you hear about this site? Found through Google
submitted on April 11, 2008 6:02 PM EDT
Name: Edith Yudenfriend
Email Address: bejj1000@cox.net
Web site URL:
Comments: I had been diagnosed with LMS in 2004 after a total hysterectomy, had my second surgery in 2006 on my left kidney, spine and an aorta. I go for pet scans every 3 months. I love your website, keep it up. God bless all of you survivors !!
How did you hear about this site? internet.....
Name: Edith Yudenfriend
Email Address: bejj1000@cox.net
Web site URL:
Comments: I had been diagnosed with LMS in 2004 after a total hysterectomy, had my second surgery in 2006 on my left kidney, spine and an aorta. I go for pet scans every 3 months. I love your website, keep it up. God bless all of you survivors !!
How did you hear about this site? internet.....
submitted on April 9, 2008 4:21 PM EDT
Name: Leslie Gilbert
Email Address: lesliegilbert@roadrunner.com
Web site URL:
Comments: I am 3 weeks post op from removal of recurring leiomyosarcoma at right paraspinal muscle region involving reconstructive surgery and brachytherapy. My first surgery was exactly 2 years ago.
How did you hear about this site? surfing the web
Name: Leslie Gilbert
Email Address: lesliegilbert@roadrunner.com
Web site URL:
Comments: I am 3 weeks post op from removal of recurring leiomyosarcoma at right paraspinal muscle region involving reconstructive surgery and brachytherapy. My first surgery was exactly 2 years ago.
How did you hear about this site? surfing the web
submitted on April 8, 2008 6:36 PM EDT
Name: Deanna O'Brien
Email Address: dshobrien@juno.com
Web site URL:
Comments: I was diagnosed with uterine leimyosarcoma cancer (Stage 4-B) in July 2007 during a routine hysterectomy to remove a large fibroid. I have been seeing a doctor at M.D. Anderson and been fighting ever since with gem/tax (which didn’t work), and now with AIM. I am determined to conquer this dragon. Thank you for your website. I would be happy to receive any more information you may have in fighting this disease. Keep up the good work!
How did you hear about this site? surfing the web
Name: Deanna O'Brien
Email Address: dshobrien@juno.com
Web site URL:
Comments: I was diagnosed with uterine leimyosarcoma cancer (Stage 4-B) in July 2007 during a routine hysterectomy to remove a large fibroid. I have been seeing a doctor at M.D. Anderson and been fighting ever since with gem/tax (which didn’t work), and now with AIM. I am determined to conquer this dragon. Thank you for your website. I would be happy to receive any more information you may have in fighting this disease. Keep up the good work!
How did you hear about this site? surfing the web
submitted on April 6, 2008 3:47 PM EDT
Name: Ann Gathman
Email Address: Annafred44@yahoo.com
Web site URL:
Comments:
How did you hear about this site? online
Name: Ann Gathman
Email Address: Annafred44@yahoo.com
Web site URL:
Comments:
How did you hear about this site? online
submitted on April 3, 2008 4:06 AM EDT
Name: Matthew Hoag
Email Address: AEMTCC12@yahoo.com
Web site URL:
Comments: The new site looks great!!!
How did you hear about this site? I am one of the sons of Nancy and Ed Hoag
Name: Matthew Hoag
Email Address: AEMTCC12@yahoo.com
Web site URL:
Comments: The new site looks great!!!
How did you hear about this site? I am one of the sons of Nancy and Ed Hoag
submitted on April 2, 2008 9:19 PM EDT
Name: kathy beattie
Email Address: kathy.beattie@rogers.ca
Web site URL:
Comments: I had surgical removal of a uterine LMS in Oct 2006, followed by abdominal radiation. I returned to work in Feb.2007 and am healthy and very thankful.
How did you hear about this site? websearch
Name: kathy beattie
Email Address: kathy.beattie@rogers.ca
Web site URL:
Comments: I had surgical removal of a uterine LMS in Oct 2006, followed by abdominal radiation. I returned to work in Feb.2007 and am healthy and very thankful.
How did you hear about this site? websearch