Joni Fixel - Lansing, Michigan
joni@nlmsf.org
I am a wife, mother and grandmother and I live in the Lansing, Michigan area. Shortly after being diagnosed with LMS, my job was eliminated so I was stunned by being diagnosed with a rare cancer and scared to death to lose my insurance. Eventually I opened my own office and decided that while it wouldn’t be easy; at least I was in control of one part of my life. I couldn’t control what LMS would do to me…..but I could control this one little part of my life.
Like all touched by LMS, it was a total shock when my oncologist told me that there were no books written about the disease. As a lawyer, the first thing I wanted to do was read and learn about this cancer – but very little public information was available in 2003. I am a 6 ½ year survivor of Leiomyosarcoma who found and joined the NLMSF 9 months after diagnosis. I have been blessed by having No Evidence of Disease since my original surgery and feel obligated to help others in their battle with LMS.
If I am re-elected this would be my second term as Director. I am the current President of the NLMSF and if re-elected as a Director, I will remain in this role. The mission of the NLMSF is my personal mission – spread awareness and raise funds for a cure of LMS. I have met so many wonderful people through the NLMSF and having LMS and I hope that our member’s confidence in me will allow me to continue for another term as Director. I would be honored to have the opportunity to ease the fears of others diagnosed with LMS while working to find a cure.
I am a wife, mother and grandmother and I live in the Lansing, Michigan area. Shortly after being diagnosed with LMS, my job was eliminated so I was stunned by being diagnosed with a rare cancer and scared to death to lose my insurance. Eventually I opened my own office and decided that while it wouldn’t be easy; at least I was in control of one part of my life. I couldn’t control what LMS would do to me…..but I could control this one little part of my life.
Like all touched by LMS, it was a total shock when my oncologist told me that there were no books written about the disease. As a lawyer, the first thing I wanted to do was read and learn about this cancer – but very little public information was available in 2003. I am a 6 ½ year survivor of Leiomyosarcoma who found and joined the NLMSF 9 months after diagnosis. I have been blessed by having No Evidence of Disease since my original surgery and feel obligated to help others in their battle with LMS.
If I am re-elected this would be my second term as Director. I am the current President of the NLMSF and if re-elected as a Director, I will remain in this role. The mission of the NLMSF is my personal mission – spread awareness and raise funds for a cure of LMS. I have met so many wonderful people through the NLMSF and having LMS and I hope that our member’s confidence in me will allow me to continue for another term as Director. I would be honored to have the opportunity to ease the fears of others diagnosed with LMS while working to find a cure.